Unstrange Mind

Autistic Author, Artist, Advocate, and Speaker

Tag: mad pride

Stop “Diagnosing” Donald Trump

campfire

[image description: a small campfire burning in the dark night. Copyright Sparrow R. Jones, 2017]


Everywhere I turn, it seems, someone is calling the current United States presidential administration “crazy” or “insane.”

Do you not realize that these are slurs along the lines of The R Word? Do you not realize that everything I have ever said about the R Word applies to the C word and the I word as well? Using words that describe vulnerable populations to describe the actions of those who are not members of that population who are engaging in behavior that displeases or distresses you is the verbal equivalent of picking up a disabled person to use them as a bludgeon. You’re not likely to hurt your target but you are crushing those of us who become your lazy go-to when you can’t find the words you really want.

“But wait!” someone always responds. “You don’t understand! He really is crazy! He’s got Narcissistic Personality Disorder! A psychology professor said so!”

First off, that professor was behaving unethically if they diagnosed Donald Trump without even meeting him.  There is a rule in the psychiatric professions called the Goldwater Rule, so called because it arose after similar speculations were made about Goldwater.  Section 7.3 of the APA Code of Ethics says:

On occasion psychiatrists are asked for an opinion about an individual who is in the light of public attention or who has disclosed information about himself/herself through public media. In such circumstances, a psychiatrist may share with the public his or her expertise about psychiatric issues in general. However, it is unethical for a psychiatrist to offer a professional opinion unless he or she has conducted an examination and has been granted proper authorization for such a statement.

That means that it is unethical for a professional to announce a diagnosis of Donald Trump. And if you are not a professional, you are not qualified to diagnose Donald Trump.  The only people qualified to determine if a person has a psychiatric disability are trained professionals and the individual themselves.  Furthermore, revealing a person’s diagnosis without their explicit permission is a violation of HIPAA regulations specifically and a violation of privacy in general. No one has the right to disclose another person’s medical information without their consent.

Secondly, if someone you view as having authority has told you that Donald Trump has Narcissistic Personality Disorder (NPD)  (or if you have taken it upon yourself to  lay-diagnose him as such), you are wrong.  The doctor who wrote the diagnostic criteria for NPD  has publicly stated that Donald Trump does not meet the criteria. Dr. Frances goes a step further and explains why these casual lay-diagnoses of public figures are so harmful. You really should read his words: This Doctor Nailed The Problem With Diagnosing Donald Trump With Mental Illness.

I have even seen some people suggesting we “push for Trump to submit to psychiatric evaluation.”  Forcing psychiatry on an unwilling person is the height of human rights violations.  I never thought I’d find myself in the position of defending and protecting Donald Trump, but society has put me here by insisting that the basic human rights we hold so dear do not apply to him. Call him evil, call him authoritarian, call him a fascist …. but do not suspend his human rights unless you are willing to see your own human rights suspended next.

It is unethical to diagnose a person without an examination, regardless of credentials or lack thereof.
It is a human rights violation to attempt to force a person to submit to psychiatry against their will. Some reading in the psychiatric survivor literature will help you to understand what a gross violation it is.
Fighting dangerous leadership by weaponizing psychiatry against the president will only serve to hurt vulnerable Americans as those arrows will be twisted by the government and turned against us.
We already have a Vice President who supports the use of involuntary “anti gay therapy” against minors. We do not need to use their evil tactics against them. We can fight evil without becoming evil.
Study authoritarian regimes in other countries and other decades and you will see psychiatry repeatedly being weaponized against the resistance.  Audre Lord said “the master’s tools will never dismantle the master’s house.”  Nick Walker brought that philosophy into the battle against the pathology paradigm with the essay “Throw Away the Master’s Tools.”
Authoritarian dictators are the ones who routinely weaponize psychiatry to silence the Resistance. Those aren’t the tools we need to be using to dismantle the master’s house.

Neurodiversity: Creativity and Innovation Thrive When We Welcome Diverse Minds

Sparrow Rose Jones

[image description: Sparrow Rose Jones at the podium. A smiling white transmasculine person with metal-frame glasses, short dark hair, a dark red button-down long-sleeved shirt, jeans, and a black belt with silver buckle. Photo credit: Dr. Evelyn Chiang]

This presentation was delivered at the University of North Carolina’s Fourth Annual Disability is Diversity Week celebration, on Wednesday, November 9th, 2016 in Asheville, North Carolina

content warning: mention of suicide


Thank you for having me here this week to share in your celebration of disability as diversity. I travel all over the country and I have quickly grown to love Asheville and this university for setting such a shining example to the rest of the country when it comes to opportunities for Autistic people and their families.

Let me start by telling you a little bit about myself and why I am talking to you today about neurodiversity, the diversity of human minds, and the crucial role universities play in fostering and supporting diverse minds both in academia and in the world at large. I’m Autistic. In a perfect world, my telling you that would not be much different from my telling you that I’m white, 49 years old, a musician, or a nature-lover. It’s a fact about who I am.

Being Autistic means that my nervous system, including my brain, is wired differently. Some of my senses, like hearing, are tuned so high that the world can be a painful place for me. Other senses, such as my proprioceptive sense — that is, my sense of where my body is located — are tuned so low that I have to move around a lot to feel comfortable. That’s just one small sample of the ways that my body and mind respond to the environment differently. My nervous system has a wide variety of interesting twists and turns and some of those twists can vary from day to day or even moment to moment. Each Autistic person has their own interesting nervous system and that’s why we can be so different from one another in so many ways yet all be Autistic.

As a child, I had a lot of difficulty with school. I wasn’t getting adequate support and so I tended to be disruptive in class, trying to get the sensory input I needed for those senses that were turned on low and trying to escape the sensory inputs that were too intense for me to handle. Any of you who have worked with Autistic children know what kind of challenges I was up against, not to mention the challenge I presented to my teachers. Those were less enlightened times and it can fairly be said that I got an education in spite of school rather than because of it.

We still have a long way to go, but our understanding of autism has evolved and more and more Autistic children are getting good educations as they grow into Autistic teens. There are even programs being set up to help the parents of babies with special needs, like the Babies Can’t Wait Program, which offer support and guidance on how to handle caring for and raising them. More and more Autistic young adults are graduating high school and seeking a university education. This is a terrific turn of events and universities are scrambling to set supports in place to help neurodivergent students succeed in college.

Neurodivergent? Some of you will be very familiar with that word while others have never heard the word before and are figuring it out through context. Neurodivergent is just what it sounds like: some people, like me, have minds that diverge from the mainstream. We are neurodivergent. You might have heard the word neurotypical used to describe people who aren’t autistic? Today I want to talk about the importance of supporting neurodivergent students — all those students who are not neurotypical.

Although I am Autistic and autism is the neurodivergence with which I am the most familiar, both because I have lived Autistic for 49 years but also because I have hundreds of friends all over the world who are also Autistic, autism is not the only neurodivergent neurotype.

All these neuro- words! The root of these words is Neurodiversity, the main word in the title of my presentation today — Neurodiversity: Creativity and Innovation Thrive When We Welcome Diverse Minds. I want to unpack that word a little bit because understanding what neurodiversity is (and is not) will help you understand why it is, or should be, such an important part of the university mandate.

There are three different but interconnected things I can mean when I use the word neurodiversity:

First, neurodiversity is simply a biological fact. We all have brains and all our brains have variations. We might use a word like “neurotypical” or talk about “the neuromajority” or even say things about “the average brain” or “a normal brain” but hopefully most of you realize that there is no such thing. Everyone’s brain is different from everyone else’s brain in ways both subtle and significant. Those of us who are identified as neurodivergent have more significant variation from the majority, but all brains differ and thus the word “neurodiversity” is a word that describes every one of us.

This is neurodiversity as a simple, undeniable, scientific fact. All of nature supports diversity and we have noticed that our natural environment thrives best when we work to preserve biodiversity. The world of ideas is not dissimilar from nature and universities have fostered a spirit of fearless inquiry and seek to create a sanctuary for human knowledge and wisdom. More on this notion of intellectual diversity and its intersection with neurological diversity shortly.

A second meaning of the word is found in the phrase “the neurodiversity paradigm.” The neurodiversity paradigm is a philosophical approach to the biological fact of neurodiversity. The neurodiversity paradigm holds that neurodiversity is not only a natural trait of human existence but that this diversity of minds is a valuable attribute of our species. The neurodiversity paradigm maintains that it is wrong to value one type of brain above another because each has its particular benefits and contributions. Just as we would rightfully cringe at the thought of determining which gender, religion (or lack thereof), or ethnicity is the best, the neurodiversity paradigm instructs us to stop playing favorites with brain types and seek instead to foster all that is great about every brain and every human being in whom those brains dwell and for whom those brains and their larger nervous systems serve as the seat of thought, feeling, will, perception, and identity.

A third meaning of the word neurodiversity is political: “the neurodiversity movement.” The neurodiversity movement, which was born in the Autistic community but exists to serve and support all neurologies — particularly those of fellow neurodivergents such as people with ADHD (many of whom have chosen to identify as Kinetics to escape a pathologizing label), dyslexia, anxiety, bipolar, schizophrenia, and more — is a political movement seeking justice and equality for all those “differently-brained” people in every sphere of society, including the university.

So neurodiversity is a biological reality, a philosophy about that reality, and a political movement informed by that philosophy.

Now back to the mandate of the university and why I posit that upholding the neurodiversity paradigm – the philosophy that all brain types are valuable – is, or should be, part of that mandate.

Over 160 years ago, John Henry Newman wrote a book many still value today for the way he explained and defined the concept of a liberal education, “The Idea of a University.” In that book, Newman explains why it is important for a university to offer areas of study that still garner criticism today, such as the humanities.

“it is a great point,” he wrote, “to enlarge the range of studies which a University professes, even for the sake of the students; and, though they cannot pursue every subject which is open to them, they will be the gainers by living among those and under those who represent the whole circle. This I conceive to be the advantage of a seat of universal learning, considered as a place of education. An assemblage of learned men, zealous for their own sciences, and rivals of each other, are brought, by familiar intercourse and for the sake of intellectual peace, to adjust together the claims and relations of their respective subjects of investigation. They learn to respect, to consult, to aid each other. Thus is created a pure and clear atmosphere of thought, which the student also breathes, though in his own case he only pursues a few sciences out of the multitude.”

What Newman is describing could be called academic diversity or intellectual diversity and you will be hard-pressed to find academic faculty who believe a university should narrow its range and exclude wide swaths of intellectual disciplines from the educational menu offered to students and, by extension, to the world at large. At one time or another nearly every discipline universities embrace has been threatened with extinction by legislative budget cuts coming from outsiders unable to recognize the immense value that comes from art history, philosophy, musical performance, political science, theoretical mathematics, foreign languages, even English. Economic pressures and political forces focused more on everyday pragmatism than on the sort of creativity and innovation that fires the human spirit to ever higher achievements seek always to convert universities from temples of knowledge to cookie-cutter vocational pathways.

Universities resist this attempted narrowing of the collective mind every day. Yet what of the narrow range of the types of minds welcome to engage in this Great Conversation of universal learning?

Not only is there a place in academia for a wide range of minds, including those which diverge from the dominant majority of neurotypes, but the university needs neurological diversity in order to thrive and grow.

All great thought and innovation has benefitted from diversity of one form or another. African-American minds brought us the blood bank (Charles Drew), open-heart surgery (Dr. Daniel Hale Williams), an understanding of bioluminescence (Emmett Chapelle), the traffic signal (Garrett Morgan), the gas mask (Garrett Morgan), the synthesis of medicinal drugs from plants (Percy Lavon Julian), not to mention the literature of Maya Angelou, James Baldwin, Octavia Butler, W.E.B. DuBois, Ralph Ellison, Langston Hughes, Malcolm X, and so many more.

We celebrate the accomplishments of so many brilliant minds of people from various sexual and gender minorities such as Alan Turing, John Maynard Keynes, Margaret Mead, Florence Nightingale, Oscar Wilde, Willa Cather, Emily Dickinson, Eleanor Roosevelt, Leonard da Vinci.

Accomplished and brilliant women are far too numerous to name, but a few of my favorites include Emmy Noether, who developed much of the mathematical modelling of Einstein’s theory of relativity, Rosalind Franklin, whose x-ray photograph of DNA revealed its helical structure to Crick and Watson, Jocelyn Bell Burnell, who discovered pulsars, Chien-Shiung Wu, who disproved a law in physics, the law of parity, that had been believed for thirty years prior to her work, Nettie Stevens, who discovered X and Y chromosomes.

I’m sure most of you are familiar with the Autistic agricultural scientist, Temple Grandin, and realize that it was her innovative work that is revolutionizing the cattle slaughter industry, making it simultaneously more efficient and more humane.

There are so many more great neurodivergent thinkers: John Nash won a Nobel prize for his work with game theory. Vernon L. Smith won a nobel prize for his work in experimental economics. Michelle Dawson has conducted great work studying cognition and perception in autism. Charles Dickens wrote classics of literature still lauded over 100 years later. Franz Liszt, Vincent Van Gogh, Scott Joplin, J.D. Salinger, Kurt Godel, Max Weber, Sylvia Plath, William Styron, Georg Cantor, Robert Pirsig, Jean-Jacques Rousseau, Joseph Pulitzer, Charlotte Perkins Gilman

What Is a Disorder?

Smilodon Fatalis

Smilodon fatalis, the sabre-toothed cat. The name means “fatal knife-tooth” and this was the most exciting creature I’d spotted on my travels since the Borophagus hilli,  “Bone-crushing Dog” I saw at the Hagerman Fossil Beds in Idaho last  year. I discovered this graceful yet skeletal creature at the I-79 Southbound West Virginia welcome center. Photograph copyright 2016, Sparrow Rose Jones.

Yesterday, I posted an essay about Autism Speak’s new mission statement, and in that essay I wrote: “We are different and disabled but not disordered and we do not need you to accept a disorder; we need you to accept us.”

A reader commented:

Great article overall, but I’m a bit confused as to your meaning of ‘we are not disordered.’ As a person who does have multiple disorders aside from being autistic, I’m worried about what this implies when it comes to people with mental illness and other neurodiversities beyond autism; that maybe it is a ‘throwing one group under the bus to support another’ thing. I can’t imagine you meant that on purpose, and it certainly could be me misconstruing the meaning (it may have just meant to remember we are people before we are ‘disordered’) but I thought I’d point it out in case it was confusing to anyone else as well.

You are correct, dear reader, I did not intend to throw anyone under the bus. And I did not throw anyone under the bus, intentionally or accidentally. Since you are confused, I decided to make a fresh blog post so I can explain my perspective more thoroughly.

Before I start in to topics like “what is a disorder” and “why do I say that autism is not a disorder” and “mental illness” — because that’s a lot of ground to cover — let me make one quick side note first:

The Language of the Neurodiversity Paradigm

There is no such thing as “neurodiversities”  unless you are speaking in the same sense as modern physicists when they talk about “universes.” Neurodiversity is, to quote Nick Walker’s excellent and foundational essay: “the diversity of human brains and minds – the infinite variation in neurocognitive functioning within our species.” You can see why the plural form, “neurodiversities” doesn’t make sense….unless one is speaking of neurodiversity among multiple species or among multiple peoples, such as humans on Earth and denizens of some as-yet undiscovered planet with which we might establish communication in the future.

I think what you meant was “neurodivergences.” I apologize if I appear to be nitpicking your word choice, but the language of the neurodiversity paradigm and of the neurodiversity movement (two different things – see Nick Walker’s essay. It’s a must-read, really) are still new enough and the topic is important enough that we must all work hard to use this language accurately while these ideas are still taking shape in society’s general consciousness. The linguistic work we do today will save us so much difficulty and miscommunication in years to come. I am multiply neurodivergent and the accurate use of this language is very important to me because it provides such clarity in communicating my lived experience.

Now, on to the actual point of this essay.

What is a Disorder?

I can’t say enough good about Nick Walker’s work and if you have a couple of hours to watch his presentation from February 23, 2015 at CIIS, you should watch this video. I definitely recommend it, both for understanding why I say autism is not a disorder and for exposing yourself to Nick Walker’s brilliance.

For those who don’t have time or data to watch the video, here is my summary of Nick’s points that pertain to what I am discussing in this essay (there is so much more in his presentation than this. I love Nick Walker’s work so much. Every time I take the time to listen to or read Nick’s words, my entire world gets bigger.  Nick Walker is like human LSD: he expands my consciousness every time I take a dose of him.)

The following paragraphs are in italics because they are my paraphrasing (and sometimes direct quotation) of what Nick Walker says in the above presentation.

Diversity is creative potential. Exciting new things are introduced to society by people whose minds work differently from the minds of those in the culture around them. All forms of diversity are subject to society’s power dynamics, which means that those whose minds are neurodivergent — whose minds work in ways that are noticeably different from the neuromajority — are pathologized and called disordered or ill. It’s just another social power dynamic and an oppression of a minority’s civil rights, just like what we’ve seen before around gender, sexual orientation, ethnicity, culture, etc. The dynamics work the same way.

Books like the DSM tell us that autism and other neurodivergences are disorders, but it’s important to remember that science has been used for a long time to justify the oppression of those who diverge in ways that society does not approve of. The oppression of neurominorities that comes from using science to describe us as “disordered” is the same pattern we have already seen so many times in the past in other groups who have struggled to assert their civil rights against a society that chooses to pathologize their existence.

Pathologization of “disorders” leads to a social urge to normalize those who have been considered “ill” or “diseased” because their brains work in ways that differ from the “straight and narrow” neurotype that society has chosen to label as “healthy” only because it is way that the majority of people’s  brains work. The phrase “mental illness” is false and a scam. When these neurodivergences are labeled as illnesses, people are convinced that the way their brain naturally works is a disease. I’m not dogmatically anti-medication, but I’m anti-bullshit and I think the term “mental illness” is bullshit. 

There are government labs where vials are stored. These vials have anthrax, small pox, measles, and other illnesses. You cannot have a “vial of bipolar” or a “vial of autism.” These do not exist outside the bodies and minds of the people who embody them. It’s us, not illness. When I say that “mental illness” is bullshit, I’m not saying nobody should ever take medication. If you are severely depressed and there is a drug that works for you and you want to take it? Go ahead. You should not have to call yourself “ill” in order to get the mind-altering drugs you want.  I don’t think people should be involuntarily medicated, ever. But I’m all for consensual medication of anyone who wants it.

There’s a whole industry around selling these things as diseases and we live in a society that is increasingly hostile to carving out niches for people who function on different rhythms. When you honor your body and brain, Bipolar no longer feels like an illness. You’re surfing your neurology. How do you find the safe spaces to shape your life? If no one does it, it stays unsafe for people to do. The more people out there doing weird stuff with their brains and self, the more acceptable it becomes. We have an obligation to be really weird to make space for other people.

So there’s the background to my answer: what is a disorder? A disorder is an illness. I have some disorders – a connective tissue disorder that can be very painful, for example. But autism is not a disorder. Bipolar is not a disorder. Schizophrenia is not a disorder. There is no such thing as a mental illness because our mentation is our self and we are not ill. We are divergent members of a neurodiverse population that needs the full span of neurodiversity to fuel creativity, innovation, and the full expression of humanity.

Am I Throwing Anyone Under a Bus When I Say That Autism Is Not a Disorder?

I most definitely am not. I am not saying , “autism is not a disorder, but some other mental stuff is.”  I’m saying exactly what I said in yesterday’s essay: “We are different and disabled but not disordered and we do not need you to accept a disorder; we need you to accept us.” I’m not saying other people are disordered; I’m saying Autistics are not. I’m not speaking for other people at all — it’s not my place to speak for other people … although I don’t believe in the construct of “mental illness”  so if anyone is calling someone else disordered, it’s not me. I didn’t think I needed to make that explicit, but here it is explicitly stated now.

Am I Saying We Are People Before We Are Disordered?

No, I don’t engage in person-first language. If someone else wants to use person-first language to describe themselves, I will respect their choice, but I believe in identity-first language because I don’t believe we are disordered at all.  There is no need for person-first language, in my opinion, because person-first language is designed to separate people from things that are deemed shameful or diminishing in some way. Autism is not a disorder, it is not shameful, it is not diminishing. I see no reason to use person-first language. In fact, person-first language inherently implies that there is a disease or disorder present in a person, so I find person-first language offensive when directed at me. As I said, I will respect someone else’s choice to use person-first language to describe themselves because people should have the right to self-identify in any way they choose. But person-first  language is not appropriate for me.

So, no. I am not at all saying that we are people before we are disordered. I am saying we aren’t disordered and it is an oppression to suggest that neurominorities are disordered at all. We are people: Autistic, Bipolar, Multi-dimensional, Kinetic, Schizophrenic, and so on. If you are in one or more of these categories and you have accepted that you are ill, disordered, diseased …. know that you are not required to view yourself that way. You are not required to accept society’s labeling of you based on your divergence from the mainstream type of mind. You are fully permitted to embrace your natural mind, as it is, for the beautiful and creative brain you possess. read more about the Neurodiversity Movement and Mad Pride and rejoice in your uniqueness. Celebrate it. Help to forge new pathways for those who will come after you. The more that we accept and celebrate our uniqueness, the easier and safer it will be for future generations to be authentic to their natural bodies and brains.

I hope that my words are somewhat less confusing now.

 

 

 

 

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